Chronic Pain and the weather.

The leaves are falling, the air is crisp, the shops are stocking not only Halloween items but Christmas too! In someways Autumn is my favourite season, it’s exciting, it’s the lead up to Christmas and has fireworks too! I love watching the leaves fall and snuggling up in the warm with a cup of hot honey and lemon (my current favourite drink!).

Unfortunately, with the fun and exciting times Autumn brings comes the extra Hypermobility Syndrome pain. This is also the time I have to really start watching what i’m doing and pace myself. It’s so hard to explain to someone that doesn’t suffer from chronic pain just how bad things can get and how such the simplest of tasks (like walking from the car into the shops) can seem like the most daunting task for someone that suffers with joint pain.

The nature of Hypermobility is that you can have no problem doing a task one day and then you get a knock on effect which means you cannot physically move for up to weeks later, from one simple action! It’s quite isolating to be honest and can make you feel very down.

With a 2 and a half year old things get harder, he is so active, he’s a whirlwind of fun and energy and it’s going to be a challenge keeping him entertained through the months where I struggle to go out, luckily I have a new Homestart volunteer coming to us as of Friday so that will help a bit.

Today I walked to the park with my friend ( thank goodness for my Stokke Xplory as I may have had a problem!) I was able to push Rocket with relative ease and he had a fabulous time as the park, although my friend had to take over and chase him as I coul’dnt do it, signs things are slowing down again. I’m proud of myself that I managed to walk but as I write this I am in a lot of pain and can’t leave the sofa.. what do you do when your’e up to the maximum dose of prescribed painkillers and you are still in a lot of pain? how do you ease it?

If anyone needs me i’l be wrapped up in my electric blanket, enjoying the autumn from my window.

How do you cope with chronic pain and a demanding toddler?

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Kiddy – Guardian Pro 2 – Review

Because of my Hyper-mobility Syndrome, I suffer with certain areas of childcare like taking Rocket out alone in the car, he is an incredibly strong little boy and getting him into his car seat with a 5 point harness was causing a lot of pain and tears for both me and him. I was at the point where I had resigned myself to the fact I’d have to stay indoors unless accompanied for help with Rocket and that idea made me sad.

When Kiddy sent us their new Kiddy Guardian Pro 2 car seat, I was fascinated with the design. The Pro 2 will grow with your child from the age of 9 months to 12 years and instead of the usual straps it has the original Kiddy Impact Shield which is like a bolster that goes over the child’s legs and chests holding them in.

When I first put Rocket in it I was expecting a struggle to get the Impact Shield in place whilst I plugged the belt in but he was fantastic and I think it makes him feel more grown up as he will happily climb in to his seat and lift his arms up whilst I put the Impact Shield in place. He sees it as his little ‘table’ and rests his arms on it, he has much more freedom to move his arms and shoulders whilst I am happy knowing he is so much more secure in the seat.

When it comes to plugging in the belt and securing the Impact Shield it couldn’t be easier for me, I suffer with problems in all my joints from my Hypermobility Syndrome and I still find this easy as although you still need to lean over to feed the belt round and plug in, it takes the pressure off of struggling with the child and fighting to get the buckle in. Rocket has been such an angel in the car since we got this seat, not just getting in and out but also the journeys seem so much more pleasant and I put that down to the comfort of the seat.

– The Kiddy Guardian Pro 2 is extremely lightweight! I have no problems lifting in in and out of the car sometimes I have bad days when I am unable to drive. Before, I would have to stay home as I couldn’t move his old car seat into other peoples cars as it was secured and fiddly but with the Pro 2 you simply put it in place and its held in by the car seat belt so I was able to go out with my mother in law with ease and peace of mind that Rocket was safe and happy. You can also take the seat on airplanes!

I love the fact the seat is totally adjustable and grows with your child, it also has a booster cushion and the material is breathable and comfy for little people. One of the other big comfort pluses is it holds Rockets head comfortably. In his last seat it was so open that if he fell asleep he would fall to the side meaning if we did have an accident it could have caused serious neck or head injury but the Guardian Pro 2 cushions support his little head in place keeping his neck and spine safe.

The Kiddy Guardian Pro 2 does recline allowing your child to have total comfort during long drives, that’s the only thing we haven’t been able to do as we have a teeny car but the action is simple.

All in all this is hands down (and hand on heart) the best car seat I have ever seen, it’s beautiful to look at, comfortable, safe, durable and long lasting and best of all, it has given me confidence and strength to take Rocket out alone again! If you do suffer from neck or back pin or a similar condition to mine then its definitely worth spending the pennies to have such peace of mind and freedom.

Safety Features :

Original Kiddy Impact Shield, Optimised Geometric design of the lateral areas, New Kiddy Shock Absorber, High- Tech Material.

Comfort Features :

One-Hand Height and width adjustment, integrated diagonal seat-belt guide, foldable and removable insert cushion, snooze position, 3 stage leg extension, Breathable Thermotex fabric, durable cover, use in Aircraft.

Find out more about Kiddy HERE . Kiddy are also on FACEBOOK and TWITTER.

We received the Kiddy Guardian Pro 2 free for purposes of review, all opinions and words are our own.

 

A consultants visit.

I’ve finally been able to sit and write, I’ve got so many posts I need to do which I will catch up on next week but I wanted to write down what happened with my consultants appointment on Thursday first.

I had been waiting months to see my consultant, especially as the pain has been so much worse and now with my arms and hands going numb I was so worried that something sinister was going on. I usually take Rocket with me to my appointments as I have no childcare but seeing as this was such an important appointment for me to explain what’s going on, Aaron kindly swapped his day off so he could take care of the little monkey.

So basically I told her what was going on and how everything had been hurting so bad and alot worse than they had ever been, it all flooded out, so much so that I tripped up what I was saying and my words jumped around as I was trying not to forget anything ( I usually come away and think ‘crap, I should have mentioned that’)

Summing up the appointment, she thinks I have Fibromyalgia, brought on by my Hypermobility Syndrome but to diagnose it officially they need to rule out other problems that could be potentially causing the symptoms I have, so she has scheduled an MRI scan on my neck to see what’s causing the numbness and tingling in my hands and arms.

She also prescribed a new drug, which I’d never heard of before that they use to treat epileptics. It’s called Pregabalin or in America, Lyrica. The way it works is by blocking some of the nerves that cause pain ( calms them down ). I’ve only been taking them a day but I seem to have some horrid side effects so far as my legs and calf muscles are twitching like no ones buisness! I’ve also been feeling like my face is sunburnt and my skin feels fluey. I rang te doctor and she said to take one a day instead of two for a few days til my body gets used to them but after 6 weeks il be taking up to 6 of these tablets a day alongside my cocodamol and tramadol.

Last night and all of today I have spent in bed not able to move as my back has been so unstable, it clicks everytime I move causing incredible soreness and the only thing other than the pain meds that seems to help is heated beanbags which I’ve got constantly behind my back at the moment.

So all in all not a good week, but I am looking forward to the warmer weather as one of my triggers is the cold so spring should bring some relief at least!

Cold weather is coming!

and mummy is feeling the stiffness!!

yep. thats right. I hate to admit it but my HMS is getting worse by the day, if I don’t stay warm i get stiff and whether i’m warm or not, I still suffer the pain and the painkillers can only mask so much. My silver lining is that my husband now lives with me full time so no matter what a horrible day i could have, I know that he will be back in the evenings to help out with the hyper 9 month old! and he really is a star and has been helping with the housework alot these last few days.

We took Littlefoot to a firework display at my parents neighbours and lo and behold he slept right through them, only waking at the end (and we were right next to them in a FIELD!!!) he was unphazed lol!!

Not much else has been going on, we went for a family walk to see the gorgeous red and orange leaves and took some pictures 🙂

so there you have it!! Luke is 9 months old on the 14th and time is flying away!!! Im gonna go relax now whilst my painkillers kick in!! night everyone! x